Living life one day at a time

This is just going to be a random blog about everything. As for the title I just like that quote and it's true we all live lif one day at a time. Life for me has been awesome. What has your life been like?? I've got a great boyfriend and our relationship couldn't be any better. We use to argue all the time because I didn't think he loved me anymore, but now I'm starting to realize that he loves me because he's been showing it more then he use to. He would never want to kiss, hug or say "I love you" to me and I don't know why. I know I am controlling, but I love him and I don't want to lose him. I hate that he does other things without me and never wants to spend anytime with me. I get jealous really easily and trust me I hate it because then it's like he's stepping away from me. Now a days we have been doing great and I love it that way. If you are wondering how long we have been together almost 3 years of May 17th, 2011 of next year. I've been doing better not wanting to be with him 24/7. I realized that everybody loves to have there own space, but I don't want it to the point where he never wants to spend time with me or to the point where he breaks up with me. I love him so much because he's always been there for me through everything through the bad times and the good times. I'm hoping that we will be together for along time even though he's not the marrying type because I love him so much. If we ever broke up I think I would be devasted for along time, but I will always remember that I got Jayden to love me for who I am.

We have a 1 year old son whom I am getting worried about because he isn't eatting a whole lot. Tomorrow I am calling the dr.s office because I don't want him to end up in the hospital. I hate knowing that something could be wrong with my son. He has this thing called Velo-Cardio-Facil Syndrome. The same syndrome that I have (his mommy) and I hate it. So far he's normal and don't have anything wrong with him, but the missing chromosome. I posted another blog about VCFS on the bottom. Actually, that was my first blog that i ever posted. Jayden is also teething alot more then usual. He now has 4 teeth on top and 2 teeth on bottom and more to come. I know that he is teething again because he's drooling really bad, fussy, bad dirty diapers and a runny nose. I'm trying sippy cups now during the day and before he goes to bed he gets a bottle. I am also going to start him on potty training because I don't want to start too late and then it be even harder to train. He is almost 18 months anyways because on the potty train box it says 18 months and older. I love my baby boy he means the world to me and I will always have someone to love me back as much as I love him. Jayden is already saying a few words such as "hi" is his favorite word and "Hey". Jayden almost said "Trey" which is his uncle that he loves.  (:

Life sometimes suck though since I stay home all day long. Don't get me wrong I love staying home with my son, but it would be nice to have a job again. I use to work at this stupid place called Culvers, but I quit because I couldn't stand the managers anymore. The managers sucked because they favorited alot and they wouldn't really let me do anything there, but run the food. I understand that I can't count money back very well, but there are other things to do there to. It was just stupid because I asked for Winter off and work during the Summer because I use to live out in the country and the plowers didn't come down the road and we had to shovel for ourselves. They expect me to go slow even with my son in the car, but I understand that I already knew I am suppose to go slow with my son in the car, DUH! They told me to hand in my hat and shirt and never told me why so I figured I was fired. They called me, but I didn't answer because I was kind of mad and didn't want to talk to them. This was the time I was prego with Jayden and after I got off of maternity leave I asked for my job back and they said "NO" which is stupid. They hired other people there more the 4 times and they wont' hire me back. That's okay it's there own fault the lost a good worker because all the customers there loved me.

I hoep that I really get to go too bed soon because I'm really tired. I've got the early bird who wants to wake up at 6:30am in the morning which sucks. I guess it's a good thing though because when he starts school he will no when to get up in the morning.

This is my longest post ever. I don't really know how to end it. Other then I love my life and I have a great family with great friends.

~*~*~*~*~BYYYYYYYYE ~*~*~*~*~

(:

Jayden Adventures

One day Jayden decided to take a few steps all by himself like a big boy he is. Everyday he tries his hardest to walk and he thinks it's the coolest thing ever. I know that soon he will be able to walk because he almost has it. I"m sure at the end of this month he should be walking by Halloween! I know that he's going to have bumps and bruises, but I don't want him to. I sure hope he tries to becareful while he is taking his steps. I just can't wait for him to start walking on his own because it is so cute to see little ones to walk. I know as soon as he starts walking that I'm going to be in trouble because he's already a fast crawler. I know that when we go to the park he ain't wanna leave. He already gets mad because I have to take him out of the bathtub. He's going to love being in the water and being outside. Jayden always goes by the door just to look outside because we are always at home. I'm going to try and get out more, but now that it is getting colder outside it won't be a good idea. When it was summer we went for walks and we went to the park a few times. Jayden loves going for walks and being around everybody. Jayden has 4 teethies now and they are really bothering him. I hate seeing my baby boy in pain because I love him so much. He sometimes screams in his sleep and I hate it because I know he is in pain. I know that it is his teethies bothering him. We give him tyenole at night that helps him. He barely takes any naps anymore and it's frustrating because it's hard to get Jayden to sleep. He also loves giving hugs like me because we are loveable people. I'm pretty sure that he might be like me because I love being around everybody, but I don't really care for being outside. I guess only if there is something to do, but what is there to do in Burlington, IA. I'm guessing you have to know the right people and the right places to have a good time.

On the other note! We got to see my boyfriend's cousin Brandy's little girl today and she is very cute! Her name is Leah Ann and that is a pretty name. Congratulations Brandy! (:

Basically, I just babbled on and on and I sure hope that you like this blog as much as you liked the other one. I'm loving my life everyday even though we might have an argument now and then that doesn't mean that our love for eachother will ever end. I love my son! Jayden is my world and without him I wouldn't be who I am today. I love my boys! <3

My baby boy is my world and I would do anything for him. I now know that I will always have somebody whom will love me back as much as I love him. No matter what we will always be a part of each other. I know that there will be some "I hate you's",  & those words will hurt, but at the end of the day we will always love each other! =D


This video is a different song/singer!

Jayden loves to dance! He started dancing to Enrique Iglesias when my boyfriend was playing it. It was the cutest thing every because we've never seen him dance before. Jayden dances all the time when he hears music now and I absolutely think it's the cutest thing ever. Jayden thinks its also the coolest thing ever. He's gonna be a cutie when he becomes a toddler.

Our blessing child named Jayden!

It's A Boy!

Jayden Keever

9|7|09

5lbs 13o. & 17in.

Burlington, Iowa

He's a baby boy whom was born on September 7th, 2009 whom we love very much with all of our heart. Jayden was born with velo-cardio-facial syndrome which is caused by the deletion of a small segment of the long arm of chromosome 22 (specified as 22q11.2 deletion), Atleast 30 different symptoms have been associated 22q11 deletion. Most of these symptoms are not present in all individuals who have VCFS.

symptoms

• cleft palate, usually of the soft palate (the roof of the mouth nearest the throat which is behind the bony palate);
• heart problems.
• similar faces (elongated face, almond-shaped eyes, wide nose, small ears);
• eye problems.
• feeding problems that include food coming through the nose (nasal regurgitation) because of the palatal differences.
• middle-ear infections (otitis media).
• low calcium due to hypoparathyroidism (low levels of the parathyroid hormone that can result in seizures).
• immune system problems which make it difficult for the body to fight infections.
• differences in the way the kidneys are formed or how they work.
• weak muscles.
• differences in the spine such as curvature of the spine (scoliosis) or bony abnormalities in the neck or upper back.
• learning difficulties
• speech impairment.

Jayden is a very healthy and happy baby boy whom everyone loves being around. He is a very special baby whom will always be a part of my life. I'm sure there will be some " I hate yous" because he's going to have a rough life, but we will be strong for him and get through this together. Jayden has had tests done and all of them are normal which is really good. His cleft palate is normal which is even better. He only has a constipation problem which is very sad because he screams. I feel horrible because there's really not much for me to do. I give him milk magneisa every morning to try and help him out, but sometimes it don't want to work and it makes me sad.

Hello.

My name is Nicole & I am a 24 year old woman with Velo-Cardio-Facial Syndrome (VCFS). I've had thsi syndrome all my life since I was 3 years of age. My mom and dad didn't even know were it came from because nobody in my family has this kind of syndrome. Sometimes it is gentics, but sometimes it just comes naturally.

My symptoms

• speech impairment (cleft palate)
• learning difficulties.
• constipation.
• long fingers.
• ear infections.
• eye problems (lazy eye)
• differences in the spine such as curvature of the spine (scoliosis)

I'm in a wonderful relationship with Justin Keever whom I love very much. We have been dating since 5|17|08 and I couldn't ask for anything better. We have our moments, but no matter what our love for each other will never change. We are a family now & family always stick together. Now that I am a mom I'm trying to be stronger for my son because I want him to know that I love him. I want him to know that I will always be there for him no matter what happens.  Live life to the fullest.

That's my story.